Sunday, February 22, 2015

Let It Go

30% of children with rare disease will not live to see their 5th birthday. -Source:  Global Genes Project

That statistic has haunted me since the day we learned of Matthew's diagnosis.  Since then, there have been too many days and nights I was scared he would fall on the wrong side of that statistic. 

On Friday, I will be letting it go because our sweet, tenacious, unique, opinionated, fun-loving Matthew will be 5!  It is a day I wasn't sure he'd ever see.  Friday, we plan to celebrate it like the awesome miracle that it-- he-- is! 

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