Now, 5 years after Matthew's diagnosis, I don't yearn for the information like I did before. Probably because I now know Matthew.
I enjoy meeting those impacted by a 4q duplication. But while their journeys are somewhat similar, they are also very different from ours. Each story is uniquely his or her own. I know there is only one Matthew.
When I first started teaching this year, I'd look in the special education department to see if I could envision what life might be like for Matthew years down the road. Similarly, I have realized that there are no Matthews. The school system has likely never seen anyone exactly like him, because there is only one Matthew.
That knowledge used to make me a bit batty, but now it is almost comforting. We don't know what to expect. No longer scary, it is empowering.
|It will be a challenge assessing what Matthew knows, given his speech and OT issues, but I have no doubt this kid will figure it out given enough time.|
|When he wanted the truck out of the way, he tried to push it out of the way. Matthew doesn't realize he has limits.|