Our sweet baby Matthew did make it to a year. On February 21, 2011, we were assigned another fantastic caseworker (and PT), Christy, and we had another evaluation and another discussion about the big 'graduation' date in what would be 2 years. Coming off intestine, heart and skull surgeries in the months leading up to the evaluation, I still wondered if Matthew would live to see that graduation date.
Not only did he make it another year, but Matthew thrived! Fewer surgeries, a fixed heart, and lots of therapy (including occupational, physical, speech, and cognitive). At that next yearly evaluation, on January 31, 2012, I knew Matthew would see that magic graduation date, but I still had a hard time imagining what Matthew would be like, what he would be doing, at that date, just a little over a year away.
Another year passed, and today, February 19, 2013, was graduation day! A day that I have been thinking about for almost 3 years. A day I had tried to imagine, but never could.
Today was a bright and sunny day, a perfect reflection of Matthew. With the help of our wonderful therapists (Team Matthew), he is walking, running, riding a 3 wheeled scooter, not yet talking, but communicating, threading beads, doing puzzles, climbing stairs, drawing with crayons, using a fork, drinking from a cup, sucking from a straw, and much, much more. He is doing so much more than I dared to wish for that March day in 2010.
We owe a huge debt of gratitude to Team Matthew, who have seen Matthew through every single baby step of his journey! I will miss these caring and compassionate women, who have come to our home twice a month for the past 3 years. Thank you to Dava, Christy, Ysabelle, Cindy, Mary Lou, Sanwana, Carolyn, and Kristen. They have not only helped Matthew but they have been a major source of support for me as we have navigated Matthew's journey. I do have some anxiety about how the new Team Matthew (post graduation) will come together. But today, I am mostly thankful for where Matthew is right now and thankful for the team that has helped us along the way.
Today was a very good day. Happy graduation day!
|Our happy Matthew with his PT/caseworker, Christy. |
She and I were both excited about today, and Matthew is always excited, every day!
|I often feel woefully underprepared to be Matthew's mom, |
and am so very thankful for the amazing people that have been placed in our lives to help light our way.