Similarly, one particular sorority I joined being Matthew's mom is 'Moms of Unique Kids'. Though no one shares Matthew's particular chromosome disorder, there are lots of kids who have very unique disorders, and some of them are similar to Matthew's. It is a sorority I never would have pledged, but one I am thankful I have found. These mothers may encounter different curves in their little one's journey, but we all relate to the fact that we are all on the journey of the unknown.
I love to hear about, see and meet kids who have a similar diagnosis to Matthew. I learn from their experiences and I hope that they are able to benefit from our experiences as well. It is a small sorority so every connection is huge!
There is a little 7 month old boy who has a similar chromosome duplication to Matthew. I believe he is also the only one known with his particular chromosome disorder (which includes a deletion as well). He and his family could use prayers and well wishes today as he undergoes open heart surgery to correct his Tetralogy of Fallot heart condition.
|Baby E sitting like a champ!|