Sunday, February 23, 2014

Heads Up: World Rare Disease Day 2014

World Rare Disease Day is an annual observance held on the last day of February (February 28th or February 29th in a Leap Year) to raise awareness for rare diseases and improve access to treatments and medical representation for individuals with rare and genetic diseases and their families.  The seventh annual World Rare Disease Day will be held on this Friday, February 28, 2014. On this day, various activities take place in the United States, Europe, Russia, Japan and elsewhere around the world. (source:  Global Genes Project)

How very fitting that the day is the day after Matthew's birthday!  Please join with our family on Friday to celebrate Matthew and the 300 million people worldwide like him with rare and genetic diseases by wearing your favorite pair of jeans.

In addition to wearing jeans on Friday, if you'd like to raise awareness year round and show you 'care about rare', please drop me an email with your address and I will send you a magnetic blue jean ribbon for your car.  We have an abundance we'd like to share. 

From Matthew and our family, thank you!

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