This dilemma reminded me of a Ted video that a dear friend sent me that raises a great question for parents of unique kids--do we try to make his life as 'normal' as possible or do we go the other way and celebrate his 'uniqueness'? As Matthew's mom, I struggle with the desire to do both.
I saw a sign in a store that read "Why try so hard to fit in when you were born to stand out?". Ironic, isn't it, that I want Matthew (heck, all of my kids) to fit in but yet I want them to be unique and special too. I'm unsure if you can do both.
For Matthew, he is unique. With his 8 beautiful fingers, his cute misshapen ears, and his bright but downturned smile, he will always stand out. I want to celebrate him as the perfectly unique being God made him, but I also don't want him to suffer for it, which I fear will be inevitable. I want him to have a normal life, but be special too.
For a much more eloquent perspective about 'turning off' down syndrome, read this post from a mom whose daughter has downs syndrome.