Today Matthew had his pre-op pictures taken, met with his cranialfacial surgeon, met with his neurosurgeon, and had a lengthy discussion with anesthesia in preparation for his Dec 6 surgery. Now we just need to keep him (and everyone in our house) well for the next 12 days.
As I was feeding Matthew in the waiting room, frustrated that he wouldn't finish his bottle, I looked over at a cute little 4 year old and watched his dad fill up a syringe to put into his feeding tube. I needed that daily dose of perspective. Instead of being perpetually frustrated with his eating, I should be thankful that Matthew is taking a bottle. It wasn't always easy for him, and it is sometimes still a battle, but he can and for that I am grateful. Sitting in these waiting rooms, with so many families experiencing the unexpected, is a humbling reminder that we are very lucky! We have a lot to be thankful for this year.
Have a beautiful Thanksgiving!