After getting some rest, Darren at the chair next to Matthew’s bed and I in our bed at home, we feel ready to take on the weekend here at TCH. I was disappointed we all won’t be home for the weekend, but hopeful that we’ll go home early in the week without a NG tube.
It will be a very happy day at the Hoy House when we are all at home. Alyssa’s first words when she came into my room this morning was “where is baby Matthew?”. The ‘little mommy’ as I’ve started calling her, misses her baby. Last night and this morning, Alyssa and Jackson were a little more emotional than usual, which isn’t surprising given all of the changes and routine modifications this past week. (And to be honest, we are too!)
Not much activity/change with Matthew since Darren’s update yesterday. We are still waiting for renal to come and evaluate Matthew. His creatin levels are still high which indicates there might be an issue w/his kidney function. Our neonatologist believes that they’ll want some additional tests. Physical therapy came by to see him but he was feeding so they’ll be back this afternoon. The lactation consultant came by , just to see if he has an easier time traditionally feeding than the bottle, as we really want to do whatever is easiest for him. But Matthew had just fallen asleep after his 2 hours of being awake after his 9am feeding. He's been pretty tired from all of the poking and proding and is still taking 1/2 of his feedings through his NG tube. Hopefully this weekend, without the huge blood draw, we'll be able to concentrate on getting that percentage from the bottle higher and higher.
Matthew has been a total blessing to our family. Although his uniqueness was totally unexpected, we have already learned so much from him in his 6 days. We took so many things for granted, and this was a great reminder that we should be thankful for each and every day, every moment. We had gotten into routine in our lives, doing things one way, and expecting the same from baby #3. Baby Matthew is going to help us learn to do things in a whole new way. Finally, we have never felt more loved and supported. The prayers, notes of support, offers of help have been unbelievably uplifting. Thank you!