Happy 1 week to Matthew! Everything that has transpired over the last week still seems surreal. The birth, discovering Matthew’s uniqueness, the hospital stay, the outpouring of love and support…it has been quite a week.
So first, the good news: At 6pm last night, Matthew finished an entire bottle (2 oz). No NG tube! For his midnight, 3am, and 6am, he’s finished all or most of his bottle only needing 7ccs via the tube. We are doing a happy dance after his feedings. He just needs to keep it up.
We believe Matthew is out of the woods. Most of the issues we’ve uncovered are not immediate. Our one immediate concern though is his kidney function. Please send your prayers that we get seen by renal soon. We believe that they will want more tests and we hope that they don’t wait until Monday to request them, which would probably lengthen our stay.
Until yesterday, Matthew’s social calendar was full. Tests, blood draws, pokes, prods, exams, and meetings with specialists filled his day. Now that we have come to the end of the week, we are hurrying up to wait. We are still waiting for a visit from renal and a visit from physical therapy. We wait for every 3 hours so we can feed him. We now have a lot more downtime. Thankfully last night we had some wonderful friends visit. If you are in the area and would like to visit, we would welcome the distraction from the waiting. Please give us a call or text to let us know to expect you.
As Darren and I were planning our 3rd all natural birth for Matthew, we joked that Darren is my surrogate decision maker during labor. I know that I cannot make any decisions during labor so don’t even ask me. I think that’s almost what we’ve needed this week…a surrogate decision maker. I could have used someone to tell me what to do. I don’t know if it’s been the lack of sleep or that my brain is preoccupied with other things, but I don’t feel that my complex reasoning (or sometimes my basic reasoning) faculties are firing on all cylinders. Thankfully between the 2 of us we’ve been a functioning team. As well, one of our sweet friends is helping to coordinate meals when we get home, taking charge of the rudimentary decision of basic sustenance for which we are very grateful.
Speaking of being grateful, we will forever be grateful the love and support by our friends, family and friends and family of our friends and family! Thank you!