Because Matthew is one of two known people in the world with his disorder and because his particular chromosome duplication is larger than any published accounts we've been able to find, we are flying blind. Matthew is writing the book.
We know Matthew's not a typical child (hitting the developmental milestones like Alyssa and Jackson), and we don't know yet if he'll just be developmentally delayed or if he'll be developmentally disabled. We don't have any good guess about what the future will hold for Matthew and his development. Really, we have no idea what the next week holds, much less months and years from now. We don't know if Matthew will ever be able to walk or talk. We pray he will and we will do whatever we can to help him. All we know about Matthew's abilities is what he can do now.
And right now, we celebrate because Matthew is using his hands. He is grabbing at toys, at his pacifier, at the telephone, etc. Matthew is interacting with his world through touch. Every developmental milestone Matthew hits is a huge reason to celebrate in our house as we don't ever know it will happen until it finally does. We pray we have many more reasons to celebrate Matthew's development as the weeks, months, and years go by.
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