No news is good news in this instance. They were not able to get Matthew to do anything unusual with his eyes during his ophthamology appointment. The doctor said that of the patients like Matthew (whose eyes seem fine during the appointment), about 80% outgrow the issue within 6 months. The other 20% worsen and often need surgery. Time will tell.
I spoke with Dr. T's assistant today to schedule our next follow up and I casually mentioned our appointment with the ophthamologist today. She said that it isn't unheard of to have eye issues after the craniosnyostosis surgery and they usually refer patients to an ophthomologist if issues arise. So, hopefully this issue is temporary and will resolve itself.
Matthew was in the helmet 22 hours yesterday and will be in it 23 hour today onward. He seems to be used to it during the day. Matthew's sleep is still rough (waking many times a night), but it is improving. Dr. T's assistant indicated it usually takes kids a week of sleeping in the helmet to get used to it. 5 more days! Matthew sweats a lot in his helmet, so I'm glad that the weather has turned cooler (only in the 40s today). Even with the cooler weather, the sweaty helmet smells bad!
Tomorrow is ear tube Tuesday! Although it is always nerve-racking when your baby undergoes a procedure under anesthesia, tubes seem like a walk in the park after the last 3 major procedures (intestines, heart, head). Hopefully it will be as easy as we hope!
Subscribe to:
Post Comments (Atom)
No comments:
Post a Comment