We’ve had a string of good news lately…Matthew’s improved eating post-surgery and the improved hearing. We’ve been on a high!
But Matthew is making sure we don’t become complacent. His appetite has decreased lately and we have suspected that he had an ear infection. At the doctor’s office this morning (our new pediatrician), we were given news we expected … yep, double ear infection, and news we didn’t expect. The doctor thinks Matthew has “metopic synostosis” which is a type of craniosynostosis.
“Craniosynostosis is a term that refers to the early closing of one or more of the sutures of an infant's head. The skull is normally composed of bones which are separated by sutures.
As an infant's brain grows, open sutures allow the skull to expand and develop a relatively normal head shape. If one or more of the sutures has closed early, it causes the skull to expand in the direction of the open sutures. This can result in an abnormal head shape. In severe cases, this condition can also cause increased pressure on the growing brain.” (source: http://www.kidsplastsurg.com/skull.cfm)
From what we’ve read, it sounds like this can be fixed via surgery (and maybe a cute little helmet). Click here for a nice overview. (Thanks, Bonnie!)
We’ve been referred to a craniofacial surgeon and have an appointment for a formal diagnosis and discussion about treatment options early September. We are thankful there is a fix for this uniqueness and pray for the best outcome for our sweet baby Matthew. Thank you for the continued prayers for Matthew and for us as we deal with this latest surprise.