Cardio Update

What a day!  First Matthew and I fought rush hour traffic to make it to TCH by 9:10 for our 9:30 follow up with cardiology. I got there, signed in and waited. And waited. And waited.  Finally at 11:15a I asked "Did you guys forget us?"  and was told we were being rescheduled because we missed an 8:45a echocardiogram appt.  After I told them I wasn't even told we had an 8:45 appt, they brought us back for the echo.  Then we went back to the waiting room and waited...and waited.  At 12:45 we were called back where they took blood pressure (still high) and heart rate (still low).  

I know by now we should expect the unexpected, but since it is the "unexpected", we don't.  The fellow came in and let me know they've been discussing Matthew's case and there are some concerns from the echo.  Matthew's left chamber is thick.  He threw out terms I'd never heard before... moderate dilated hypertrophy, left ventricle hypertrophy, cardiomyopathy, noncompaction.  Matthew also has it mild on the right.  The attending came in to let me know they believe that this is all interrelated...the high blood pressure, the low heart rate and the hardening.  They have referred us to the expert cardiologist specializing in the heart muscle and electrophysiology.  

The first appointment they had w/the new specialist is Oct 29 which is the Friday before our head surgery. When I explained that, they are trying to work us in.  We'll see.  We are playing beat the clock 3 weeks to head surgery, and I am pretty sure we will have to delay. We have to get cardio sign off before cranialfacial/neurosurgery will get anywhere near an OR.  So many balls to juggle and heart trumps them all.

If you've read our story for very long, I'm sure you've read between the lines.  You know what we don't say.  We are scared.  Thank you for continuing to pray for our sweet baby Matthew and for us!