We really dislike the weekends in the hospital. It is quiet and not a lot gets done...so not much new to report. Matthew's heart rate is still low & often irregular, his blood pressure still high (though coming down off the high), and pulse oxygen level is still variable. The critical care docs ordered a CT scan of Matthew's head to see if his brain was swelling due to his craniosynostosis. We are still awaiting the results. If the results are negative (no swelling) then we were supposed to head to the cardiac floor. No telling if they released our room already though. If there is swelling, we have to meet w/neurosurgery to discuss. So... we continue to wait and pray.
Although the days we've sat at Texas Children's waiting and praying are some of the scariest, it has always been a reminder of how lucky we are and what an amazing life we have. We are thankful for our parents (who have lovingly cared for Aly and Jax when we were here loving on Mattie), our families, our friends (old and new), the caring & smart staff at this premier medical facility, and all of the people that have lifted Matthew up in thoughts and prayers. Thank you!
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