2 steps forward: Matthew became more awake and more active throughout the night. So, he was extubated at 3am. He's on a little oxygen to help him out, but he's breathing on his own and is picking up respiratory strength and frequency. He does have a bit of stridor (swelling of the vocal cords) and they ordered a breathing treatment for him but decided he really didnt need it right now.
1 step back: Matthew's heart beat is still 'irregular' and much lower than it was before yesterday's procedure and his blood pressure is a bit high. Cardio has been called and an EKG and chest x-ray have already been completed. This seems to be the next big thing to get figured out.
We are happy with the positive trajectory as is our critical care team. We've had a bunch of great nurses and PAs here in the PICU, as well as the night attendings. I've been dreading the day shift because the attending yesterday was a mumbler. So much so that even the nurse asked "what?". Hopefully we won't be on his service today. We are so thankful for great care!
It's weird, not in this situation, I'm pretty pollyanna. But here, in these harder times at TCH, fear creeps in. Thankfully Darren's faith that everything is going to be okay never waivers. Today I'm going to be more like my beloved. I'm going to have faith that the really smart people here will figure out what's going on, and help our sweet baby Matthew. Thank you for your continued prayers and well wishes!
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Katie, I'm thinking of you and hope you continue to find the strength and faith you need to do. You are so amazingly resilient and positive. I am following along avidly and keeping you and your family in my thoughts. --Elizabeth
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