What a roller coaster the last 7 months have been, full of surprises. Matthew isn’t doing everything a typical 7 month old would be doing (sitting/crawling) but he’s unique and will get there in his own time. My biggest worry 7 months ago was that Matthew would never be able to show joy and thankfully that worry was for naught. Throughout everything he has endured and is enduring, Matthew is a sweet and happy baby.
Matthew 7 months |
This weekend, I spoke to the on call cardiologist to discuss Matthew’s medicines. He was originally prescribed 2 meds, 2 times a day but he was only taking one of them once a day because we only needed to manage his symptoms of congestive heart failure for a week and a half (between diagnosis and the 1st scheduled heart catheterization). Now we have to manage the symptoms for almost another month. So, we have moved to the original prescription of 2 meds, 2 times a day balancing the needs of his heart with the function of his one kidney. We are to watch out for vomit, which would indicate that Matthew’s kidney is not properly filtering one of the meds.
Yesterday, a day after starting the two meds, we noticed an improvement in Matthew. He was eating more, he seemed happier, and he had better coloring. We were encouraged. And then he threw up…twice. Of course! Matthew’s road is never straight and narrow. It is not the easy one. Now we’ve got a call into the cardiologist again to determine our next steps. We appreciate the continued prayers for sweet baby Matthew!
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