Matthew and I journeyed to TCH this morning when the moon was still high in the sky. After several hours of assessment, the doctors determined that today would not be the day to fix Matthew’s heart. The risk of bad outcomes from the anesthesia mixed w/the tail end of Matthew’s cold was way too great, outweighing Matthew’s congestive heart failure and need to fix the craniosynostosis. It was not a quick or easy decision for the doctors, but they felt it was in Matthew’s best interest overall to not proceed today. We are grateful for the doctors’ prudence, though admit we are disappointed Matthew isn’t well enough for the procedure.
I have to believe this is all part of the bigger plan for Matthew, but it was extremely hard knowing that we have to wait almost a month to reschedule. Another month of Matthew enduring the symptoms of CHF. Another month plus before skull surgery. Another month plus of rapid brain growth with a skull not ready for it. Another month of poor eating. Another month of worry.
The new heart catheterization date is tentatively October 20. Right now, this doesn’t seem optimal, but we have to keep believing that it is all part of the grander plan for our sweet baby Matthew. Thank you for the continued prayers for Matthew and for us.
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