Surgeries Scheduled

Last night, I spoke to our original cardiologist (Dr L), who doesn’t think Matthew’s throwing up is a result of the heart meds so we started up the meds again yesterday.  So far, so good.  No vomit and Matthew seems better than he has been in weeks. 

Dr L said the on call cardiologist from the weekend had called TCH to discuss Matthew’s case and heard that Matthew was scheduled for cath on Oct 7. My response to this news: “Really?!?!”  I called and left a message to find out if this was misinformation or (hopefully) true.  I received a message back at noon today, and it is (hopefully) true.  The scheduler is looking for a room (OR?) for October 7 (or earlier) and will get back to us with all the details when it is confirmed.  Wo-hoo!!  Prayers are answered!

Today was our second cranialfacial appointment.  For info from our first appointment, click here.  The surgeon (Dr T) showed me Matthew’s CT scans, and no surprise, Matthew’s metopic suture is closed tight. All other sutures are open, which is good news.  This skull surgery is not urgent, but it is optimal timing now.  Dr T wants to wait a few weeks between the heart cath and the cranialfacial/neurosurgery to allow Matthew to heal so they are looking to fix Matthew’s head in early November.  Dr T’s scheduler will call me this week with a firm date and then we will schedule a multitude of pre-operative appointments (neurosurgery, anesthesiology, helmet, pre-op pictures, etc). 

So, it sounds like Matthew is moving toward his much needed surgeries for his heart and then head in the next 6 weeks or so.  These are surgeries we wish Matthew didn’t need, but because he does, we are thankful they are soon.  We are excited and scared at the same time.  Thank you for the continued prayers for our sweet baby Matthew and for his skilled surgeons.